Monday, June 10, 2013

No surgery needed & going home

Lyla started pedialyte a couple of mornings go, and she got back to her normal tube feed &TPN regimen within 32 hours. She did well with no vomiting, except last night & this morning. she is passing things through fine.  They started her on  Xifaxan for bacteria overgrowth, and Bethanochol to help with bowel motility. Doctors origanally did not want to try and treat her UTI, because of the chance that she would only become immune to the antiotic. But now they decided to treat it with oral Cipro, which has a good prectage of being affective with esbl-uti. 
 She did have another urine culture collected yesterday, because the first one grew, but then after being sent off for more testing it was inconclusive. The rusults came back today, and t was comfired Lyla does have ESBL. It's a very good thing that Lyla didn't need surgery, for the obvious reasons, but also because of the risks of ESBL  getting into her bloodstream, and infection. Its scary enough with her having a central line. I am still am not sure what future holds. They can treat this urinary tract infection, but the ESBL would still be there. If a healthy person was colonized with this superbug, they probably would never even know they are a carrier, but for someone with a weakened immune system, chronic ill, or elderly, It can be deadly if in the bloodstream. & I hate that!!! Lyla's surgeon and I talked about surgery in the future if Lyla continues to have flare ups that result in dilated bowels and needing bowel rest. He would be able to do what is called a STEP Procedure, which is one way to manage short bowel syndrome. Its a procedure to lenghten the small bowel, but can only be done when the bowel is dilated enough. We have talked about this procedure multiple times since Lyla was born, and if she did end up needing surgery last week, then the surgeon would have gone ahead and did it. One, because he would have already be in, two, her bowels were dilated enough to do it, & three, she could benefit from it tremindiously. That would be taking BIG steps back, so that we can move forward in the long run. But thats future talk! For now, Lyla is doing ok, we decided to go home today, even with the vomiting, inhopes that the new meds & antibioics work and make her feel better. Its possible the UTI is whats causing the vomiting now. As long as she is keepng down the majority of her feeds then we should be able to manage it at home.

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